@Childhood_Dementia_Initiative
Our purpose: urgently disrupting the impact of childhood dementia
Understanding Childhood Dementia (2026) | The Wicking Dementia Centre
Understanding Childhood Dementia (2026) | The Wicking Dementia Centre
Deepen your Understanding of Childhood Dementia and explore the world of childhood dementia through this free, high‑quality online course from the Wicking Dementia Centre. Designed for families, educators, support workers, health professionals and anyone wanting to learn more, the course guides you through how childhood dementia affects the developing brain, what early indicators may look like and the types of care that best support children and their families. Drawing on leading research and real stories from those with lived experience, the Understanding Childhood Dementia MOOC presents complex information in a clear, compassionate way. Join a global learning community committed to improving awareness and support for children living with dementia. Enrol today and begin understanding childhood dementia.
The Winter Gala: Supporting Children With Dementia
The Winter Gala: Supporting Children With Dementia
Join us for an unforgettable evening of art, connection & meaning. Help change the world for children with dementia. 5 June 2026 at the Art Gallery of NSW.
The Melbourne Long Table: Exploring the Issues for Childhood Dementia in Victoria and Tasmania
The Melbourne Long Table: Exploring the Issues for Childhood Dementia in Victoria and Tasmania
Get tickets on Humanitix - The Melbourne Long Table: Exploring the Issues for Childhood Dementia in Victoria and Tasmania hosted by Childhood Dementia Initiative. TBC, CBD, Melbourne VIC 3000, Australia. Friday 15th May 2026. Find event information.
Funding call for National Childhood Dementia Unit that Will Save Australia Millions and Help Children
Funding call for National Childhood Dementia Unit that Will Save Australia Millions and Help Children
Report Urges Federal Funding for National Childhood Dementia Unit that Will Save Australia $61.5m and Help Thousands of Dying Children
Lived Experience Council
Lived Experience Council
Childhood Dementia Community of Practice
Childhood Dementia Community of Practice
Chair - People for Purpose
Chair - People for Purpose
Shape a global movement as Chair of Childhood Dementia Initiative Guide a high-impact organisation through its next phase of growth. […]
2026 ASICS Gold Coast Marathon | Childhood Dementia Initiative
2026 ASICS Gold Coast Marathon | Childhood Dementia Initiative
2026 TCS Sydney Marathon presented by ASICS | Childhood Dementia Initiative
2026 TCS Sydney Marathon presented by ASICS | Childhood Dementia Initiative
Childhood dementia, a little-known condition with debilitating consequences | 7NEWS
Childhood dementia, a little-known condition with debilitating consequences | 7NEWS
Project to establish standard global childhood dementia definition launched
Project to establish standard global childhood dementia definition launched
Global Consensus Project launched by Childhood Dementia Initiative
Changing Australia: Megan Maack and fighting for children with childhood dementia - ABC listen
Changing Australia: Megan Maack and fighting for children with childhood dementia - ABC listen
In Australia, around 2000 children are living with childhood dementia, a devastating condition caused by 145 genetic disorders that rob children of their ability to walk, talk and recognise their loved ones. Megan Maack has become a leading force in this area, pushing for greater recognition, funding and support, with her work reframing the issue into a national health priority. And as she does this, Megan is also a mother, caring for her own two children living with childhood dementia.
Fundraise for kids with dementia
Fundraise for kids with dementia
There are so many ways you can fundraise. Here are some great options.
Childhood Dementia Online Community
Childhood Dementia Online Community
A community for parents and guardians of children with a condition that causes childhood dementia.
New family support resources
New family support resources
Donate now. You can make the difference
Donate now. You can make the difference
Fundraise for kids with dementia
Fundraise for kids with dementia
There are so many ways you can fundraise. Here are some great options.
Frequently asked questions
Frequently asked questions
Answers to common questions about childhood dementia.
Join the Family Advocates Program
Join the Family Advocates Program
To build greater understanding and awareness of childhood dementia and to educate health and policy decision makers, the voice of those impacted by childhood dementia needs to be heard. Join our Family (Consumer) Network and we'll keep you updated on progress and opportunities to get involved.
An update on Angelina from her mum
An update on Angelina from her mum
Angelina has childhood dementia caused by Lafora disease. Her mum, Niki, gives an update on Angelina.
Report: State of Childhood Dementia in Australia 2024
Report: State of Childhood Dementia in Australia 2024
Noah
Noah
Renee's story
Renee's story
What is childhood dementia
What is childhood dementia
Childhood Dementia Initiative website
Childhood Dementia Initiative website
Instagram
Instagram
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