@FOXG1research
Dedicated to cure FOXG1 syndrome and related brain disorders!
Read the 2025 Impact Report
Read the 2025 Impact Report
Learn about the FOXG1 Research Foundation’s 2025 impact as a global, parent-led nonprofit advancing rare disease gene therapy. Learn how IND-enabling studies, FDA submissions, and clinical trial preparation are moving the first FOXG1 gene therapy toward patients, while strengthening research, care,
Citizen Health: AI Advocate - START USING NOW
Citizen Health: AI Advocate - START USING NOW
Citizen Health AI Advocate Onboarding Session
Citizen Health AI Advocate Onboarding Session
We’re thrilled to welcome you to the Citizen Health AI Advocate!In this onboarding session, we’ll provide a quick but comprehensive overview of what our AI Advocate can do and walk you through setting up your account so you’re ready to start using it right away.
Citizen Health: How to upload your medical records on Citizen
Citizen Health: How to upload your medical records on Citizen
Clinical Trial FAQ
Clinical Trial FAQ
Clinical Trial FAQ
Join the “Yes, They Can!” Campaign
Join the “Yes, They Can!” Campaign
Donate
Donate
Donate to Help Cure FOXG1 Syndrome
Visit Our Website
Visit Our Website
The FOXG1 Research Foundation: Advancing Gene Therapy to Transform Lives Affected by the Rare Children's Disease, FOXG1 Syndrome.
Newly Diagnosed?
Newly Diagnosed?
If your child was diagnosed with FOXG1 syndrome, the FOXG1 Research Foundation is here for you with the resources and support to guide you along your journey. Together, we are helping researchers deeply understand FOXG1 children and adults so we can drive the science to find treatments to make their
Parents: Sign up for our Parent Newsletter
Parents: Sign up for our Parent Newsletter
Subscribe to Our Emails
Subscribe to Our Emails
FOXG1 Research Foundation Email Forms
Ways to Give
Ways to Give
Donate to Help Cure FOXG1 Syndrome
Join the FOXG1 Parents Connect Support Group
Join the FOXG1 Parents Connect Support Group
Shop the FOXG1 Store
Shop the FOXG1 Store
Shop for a Cure for FOXG1 Syndrome in the FOXG1 Research Foundation Store! Spread awareness with Frankie the FOX and all the cool, fun, and stylish clothes and accessories! Rare disease awareness has never been so cool!
Read Our NEWS
Read Our NEWS
NEWS
Our Childrens Book About Disabilities
Our Childrens Book About Disabilities
The Joyfully Josie is a series of children’s books and a digital platform to help all children understand disabilities and rare diseases. By the FOXG1 Research Foundation, which is dedicated to improving the lives of every child in the world with FOXG1 syndrome and related disorders.
Register Your FOXG1 Child Here!
Register Your FOXG1 Child Here!
Accelerating research to cure FOXG1 Syndrome and brain disorders.
Sign Up for FOXG1 News
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