@amandadenise_
Medical Mom | Social Worker Batten Disease Awareness
TikTok
TikTok
Anthony's Story: Living with Batten Disease
Anthony's Story: Living with Batten Disease
Meet my son Anthony, he was diagnosed with Neuronal Ceroid Lipofuscinosis Type 7, also known as Batten Disease. Batten Disease is a rare, terminal genetic… Continue reading Living with Batten Disease: Anthony’s Story
Anthony’s Avengers Fundraiser
Anthony’s Avengers Fundraiser
BDSRA is dedicated to providing family support services, funding research, and advocating for treatments and cures. Founded in 1987, by parents seeking to build a network for those diagnosed with Batten disease, BDSRA is now the largest support and research organization dedicated to all forms of Batten disease in North America and supporting patients in countries who offer none.
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