MSU - (@Myositis)
Patient-led, nonprofit Empowering the Myositis Community.
2026 Myositis Moon Walk Tickets, Friday, May 1 at 6 pm to Saturday, May 2 at 4 pm | Eventbrite
2026 Myositis Moon Walk Tickets, Friday, May 1 at 6 pm to Saturday, May 2 at 4 pm | Eventbrite
Join us under the stars at the 2026 Myositis Moon Walk for a cosmic adventure like no other!
Weight Management Support for Myositis Patients - Myositis Support and Understanding
Weight Management Support for Myositis Patients - Myositis Support and Understanding
Visit clinicaltrials.gov for NTrust 2 trial info
Visit clinicaltrials.gov for NTrust 2 trial info
Clinical Trials | Ntrust Study | Nkarta Inc.
Clinical Trials | Ntrust Study | Nkarta Inc.
The Ntrust℠ clinical trial program aims to move this research forward by evaluating the safety and activity of an investigational therapy made from natural killer (NK) cells.
Watch Understanding Clinical Trails webinar
Watch Understanding Clinical Trails webinar
Enjoy the videos and music you love, upload original content, and share it all with friends, family, and the world on YouTube.
PSG Donor Form - Polymyositis
PSG Donor Form - Polymyositis
Novartis CAR-T Therapy Clinical Trial
Novartis CAR-T Therapy Clinical Trial
Investigational CAR-T THERAPY Investigational CAR-T in autoimmune disease We’re testing if investigational CAR-T therapy could help RESHAPE YOUR IMMUNE SYSTEM to target harmful autoimmune activity.1 Find out about clinical trials for investigational CAR-T therapy in lupus, myositis, diffuse cutaneous systemic sclerosis, and vasculitis.Participation in clinical trials is voluntary. You are free to withdraw from the […]
Join young adults myositis support
Join young adults myositis support
Join fellow young adults living with Myositis for a private, real-time group video support session. This is a safe, supportive space to connect with others who understand what it’s like to navigate young adulthood with a chronic illness. Share your experiences, challenges, and thoughts—from managing symptoms and medical appointments to balancing work, school, and relationships—with a focus on connection and empowerment.
International myositis support group
International myositis support group
We are excited to launch a new support group for all myositis patients and their care partners, held on Zoom every third Saturday of the month. This is a fantastic opportunity to connect with others from around the world, share experiences, and offer mutual support in a safe and welcoming environment. - When: Every third Saturday of the month - Time: 2:00 PM ET (Eastern Time, USA) 1:00 PM CT (Central Time, USA) 12:00 PM MT (Mountain Time, USA) 11:00 AM PT (Pacific Time, USA) 7:00 PM BST (British Summer Time, UK) 8:00 PM CEST (Central European Summer Time) Whether you are newly diagnosed or have been managing myositis for years, this group is here to provide community, resources, and understanding. We look forward to seeing you there!
Join breathe easy lung support meeting
Join breathe easy lung support meeting
Wednesday evening myositis patient support
Wednesday evening myositis patient support
Join our free patient video support session. Ask questions, share your experiences, and meet others living with this same rare disease. This session is tailored to those living with myositis including Polymyositis (PM), Dermatomyositis (DM), Antisynthetase Syndrome (ASS), Immune-Mediated Necrotizing Myopathy (IMNM), Juvenile Dermatomyositis (JDM), nonspecific myositis, and overlapping myositis with other conditions such as with Mixed Connective Tissue Disease. sIBM patients are welcome to join this session, and we have a separately dedicated video support session for those living with sporadic inclusion body myositis.
Join women’s myositis support session
Join women’s myositis support session
Women living with any type of myositis, join the MSU crew for our monthly Women with Myositis Video Support group!
Join the IMNM patient video support meeting
Join the IMNM patient video support meeting
This session is tailored to those diagnosed with immune-mediated necrotizing myopathy (IMNM), sometimes referred to as necrotizing autoimmune myopathy (NAM).
Finding balance with myositis and dysautonomia
Finding balance with myositis and dysautonomia
Join the IBM patient support meeting
Join the IBM patient support meeting
For inclusion body myositis patients and care partners only. Join our free online video support session for open discussion. Ask questions, share your experiences, meet others living with this same rare disease.
CAR T FAQ
CAR T FAQ
Board of Directors - Myositis Support and Understanding
Board of Directors - Myositis Support and Understanding
Meet the Board of Directors of Myositis Support and Understanding (MSU), a patient-centered, all-volunteer nonprofit organization
Tendon Transfer for Inclusion Body Myositis (IBM)
Tendon Transfer for Inclusion Body Myositis (IBM)
The VALOR Study: Webinar Registration - Zoom
The VALOR Study: Webinar Registration - Zoom
Join University of Chicago rheumatologist Iazsmin Bauer Ventura, MD, MSc, and learn about the results of the VALOR Study, a Phase 3 clinical trial for Adult Dermatomyositis.
Pain Paper
Pain Paper
Pain in Myositis - Rheumatology
Rare Autoimmune Disease Study | Ntrust-2 study
Rare Autoimmune Disease Study | Ntrust-2 study
Right Now Research
Right Now Research
Register for your FREE MSU Membership!
Register for your FREE MSU Membership!
Volunteer from home with MSU!
Volunteer from home with MSU!
Join Club Myositis Support on Clubhouse here!
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