Usher Syndrome Coalition

Connecting the global Usher syndrome community.

Register for USH2026 Conferenxe
Register for USH2026 Conferenxe
Share Your Story
Books on Usher Syndrome: Stories, Memoirs & Resources for Families
Books on Usher Syndrome: Stories, Memoirs & Resources for Families

Ways to Give Back

Become an USH Visionary
Donate

Accelerate Research

Join the USH Trust
USH Data Collection Program powered by Rare-X

Connect with USH

Join our Mailing List
Contact Us
Genetic Testing for Usher Syndrome

Advocate for USH

Advocate for USH Research Funding
Find Your Members in the U.S. Congress
Find Your Members in the U.S. Congress
Congressional Petition to Protect IDEA and Reverse OSEP Staff Layoffs- Created by the IDEA Preservation Coalition
Congressional Petition to Protect IDEA and Reverse OSEP Staff Layoffs- Created by the IDEA Preservation Coalition

USH Resources

What is Usher Syndrome?
Living with USH
Submit Grounded in Science topic ideas

USH Science & Research

Current USH Research
USH Science News
Nacuity Pharmaceuticals Clinical Trial Update AUS
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