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The Journey Newsletter (August 2023)
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The Europe and APAC Symposiums took place in July, while the Global Symposium countdown is on. Research from the European Symposium Collaborator Showcase is available, as are the publications and presentations shared in July. There will be August sessions on the DARWIN EU© program and the new vocabulary release, while more information on the Global Symposium (Oct. 20-22) is shared below. #JoinTheJourney
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OHDSI Videocast: Symposiums, HowOften
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In the latest On The Journey video, Patrick Ryan and Craig Sachson reflect on both the Europe and the Asia-Pacific Symposiums, and they discuss the HowOften workshop happening at the 2023 Global Symposium, and how the OHDSI community can provide evidence to understand the absolute risk of adverse events. (if video does not appear, click 'view this email in your browser')
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Where Have We Been?
• The 2023 Europe Symposium was held July 1-3 in Rotterdam, Neth., and included a main conference and two days of workshops and tutorials. The event welcomed 350 attendees, featured 5 plenary sessions, 10 rapid-fire presentations, highlighted seven national nodes and included 90+ collaborator showcase presentations.
• The 2023 APAC Symposium was held July 13-14 in Sydney, Aust., and included a main conference and a tutorial day. There were four main talks during the conference, and a full day of teaching around running a network study. Talks from both the Europe and APAC Symposium were recorded and will be posted to the symposium homepages when available.
• Research from the 2023 Europe Symposium is now available on OHDSI.org. Posters from the recent Collaborator Showcase in Rotterdam can now be viewed on the Europe Symposium Showcase homepage. Research is also being shared daily on OHDSI’s LinkedIn and Twitter feeds as part of the #OHDSISocialShowcase.
Where Are We Now?
• Registration is open for the OHDSI Global Symposium, which will be held Oct. 20-22 at the NEW location of the Hilton East Brunswick Hotel & Executive Meeting Center in East Brunswick, N.J. This three-day event will include a main conference and two days of workshops, tutorials and meetings, including the HowOften workshop discussed in the video above.
• Titan Award nominations are now open. To recognize OHDSI collaborators (or collaborating institutions) for their contributions towards OHDSI’s mission, the OHDSI Titan Awards were introduced at the 2018 Symposium and have been handed out at the U.S./Global Symposium each year since. You can nominate a community member for a 2023 Titan Award now; the deadline is Sept. 15, 2023.
• If you are interested to get more involved with OHDSI workgroups, please check out our WG homepage to learn more, or fill out this form to request access to each WG's respective Teams tenant.
Where Are We Going?
• The August 8 community call will be our annual "Newcomer Introductions" session. If you are new to the community, please join this call to introduce yourself, tell us why you have joined the community, and how OHDSI can help your research interests. If you would like to register to introduce yourself, please fill out this brief form so we can include everybody.
• This month will also include community calls around next steps for the HowOften workshop, how OMOP supports clinical registries, and our late August vocabulary update. Our community calls homepage includes the link to the weekly meetings and recordings from previous sessions.
• We had a record number of submissions for the 2023 Global Symposium collaborator showcase. If you have been selected to present your work for the 2023 Symposium Collaborators Showcase, you will be notified via email by Tuesday, August 15.
• The OHDSI Global Symposium will host our first ever ‘OHDSI Got Talent’ event. As with the popular television series, we will have a series of contestants perform 4-6 minute routines to showcase their talent, and a panel of judges will share their thoughts on what they have seen. The OHDSI community will vote for their favorite and we will crown a winner! Do you sing or play a musical instrument? Do you dance? Can you do magic or comedy? Do you have some other unique skill that you can demonstrate in 6 minutes or less? We want to see it! If you are interested in participating, please fill out this form. The deadline to submit this form is 8pm ET on Friday, September 22; you will be notified of your acceptance by Friday, September 29.
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Europe Symposium Highlights Community Growth with 90+ Research Posters/Demos, Reports On Darwin/European Initiatives Progress
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The 2023 Europe Symposium, held July 1-3 in Rotterdam, featured the widest breadth of research ever shared at the European event, and it also hosted several plenary talks and national updates to show how strong the community continues to grow.
The main conference included several talks, including sessions focused on European Initiatives Using the OMOP CDM and Data Analysis and Real World Interrogation Network (DARWIN EU®), as well as 10 lightning talks focused on OHDSI Community Evidence. Videos of all talks will be posted on the Europe Symposium homepage when available.
The event welcomed a record number of submissions to the Collaborator Spotlight, including 45 posters on observational data standards and management, 28 on clinical applications, 11 on methods research and five on open-source analytics development. The full list of titles and most of the actual posters can be found on the Europe Showcase homepage. A full recap of the event was shared during the July 11 community call; you can watch that presentation here.
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APAC Symposium Demonstrates Growth Of Community In Asia-Pacific Region, Builds On Knowledge Gained From SOS Challenge
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The 2023 APAC Symposium brought together community members from the Asia-Pacific region — and other collaborators around the world — for a two-day event that included a main conference and a full-day tutorial last month. There were focused sessions Day 1 on: OHDSI – An artisanal approach to crafting real-world evidence; A step-by-step recipe for RWE: The OHDSI Save-our-Sisyphus Challenge; Too many cooks in the kitchen is never enough: Collaborative Data Harmonisation to improve patient care; and A Smorgasbord of Health Data Insights across the APAC Region.
The main conference also included a poster session, while Day 2 focused on tutorials around running a network study, which built on the knowledge gained by several APAC leaders during the 2023 Save Our Sisyphus Challenge.
Thank you to Australia chapter lead Nicole Pratt and the team at the University of New South Wales for leading this event. We are already looking forward to APAC 2024, which will be held in Singapore! Presentation videos will be added to the APAC Symposium page listed below. You can also hear about recent developments in the region via a recent "APAC Updates" community call.
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Everybody is invited to the weekly OHDSI community call, which takes place each Tuesday at 11 am ET. These calls serve to inform and engage our community through a variety o formats, including community presentations, workgroup updates, breakout sessions, publication announcements, newcomer-focused sessions, and more. August calls will include sessions on the DARWIN EU© Initiative, OMOP Supporting Clinical Registries, a Vocabulary Release update, and an opportunity for newer members to introduce themselves and share why they have joined the OHDSI community.
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Collaborator Spotlight: Davera Gabriel
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Davera Gabriel, the Director for Terminology Management at the Johns Hopkins University School of Medicine, has had a distinguished career as a nurse informatician supporting local, regional, and national multi-site implementations of information technology, terminologies, and data standards in human and population health research. She has worked with numerous teams with various clinical and/or technical backgrounds and helped them achieve new heights in informatics.
As an inaugural chair of the HL7 Terminology Services Management Group, co-lead the OMOP + FHIR Working Group, and early participant in the National COVID Cohort Collaborative (N3C), Davera is focused on ways to strengthen the partnership between OHDSI and HL7/FHIR, including through a full-day event at the 2023 Global Symposium.
In the latest edition of the Collaborator Spotlight, Davera talks about her career journey, why OMOP is an ideal partner for the FHIR community, lessons learned as part of the N3C community, the HL7 FHIR-OMOP Connectathon, and plenty more.
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Hardin J, Makadia R, Black S, Lara-Corrales I, Diaz LZ, Kirby JS, DeKlotz CMC. Characteristics and treatment pathways in pediatric and adult hidradenitis suppurativa: An examination using real world data. JAAD Int. 2023 May 30;12:124-132. doi: 10.1016/j.jdin.2023.05.011. PMID: 37409312; PMCID: PMC10319301.
Gandaglia G, Pellegrino F, Golozar A, De Meulder B, Abbott T, Achtman A, Imran Omar M, Alshammari T, Areia C, Asiimwe A, Beyer K, Bjartell A, Campi R, Cornford P, Falconer T, Feng Q, Gong M, Herrera R, Hughes N, Hulsen T, Kinnaird A, Lai LYH, Maresca G, Mottet N, Oja M, Prinsen P, Reich C, Remmers S, Roobol MJ, Sakalis V, Seager S, Smith EJ, Snijder R, Steinbeisser C, Thurin NH, Hijazy A, van Bochove K, Van den Bergh RCN, Van Hemelrijck M, Willemse PP, Williams AE, Zounemat Kermani N, Evans-Axelsson S, Briganti A, N'Dow J; PIONEER Consortium. Clinical Characterization of Patients Diagnosed with Prostate Cancer and Undergoing Conservative Management: A PIONEER Analysis Based on Big Data. Eur Urol. 2023 Jul 4:S0302-2838(23)02944-5. doi: 10.1016/j.eururo.2023.06.012. Epub ahead of print. PMID: 37414703.
Mayer CS, Huser V. Learning important common data elements from shared study data: The All of Us program analysis. PLoS One. 2023 Jul 7;18(7):e0283601. doi: 10.1371/journal.pone.0283601. PMID: 37418391; PMCID: PMC10328251.
Kohler S, Boscá D, Kärcher F, Haarbrandt B, Prinz M, Marschollek M, Eils R. Eos and OMOCL: Towards a seamless integration of openEHR records into the OMOP Common Data Model. J Biomed Inform. 2023 Jul 12;144:104437. doi: 10.1016/j.jbi.2023.104437. Epub ahead of print. PMID: 37442314.
Im YG, Han MY, Baek HS. Association of Serum Vitamin D Level with Temporomandibular Disorder Incidence: A Retrospective, Multi-Center Cohort Study Using Six Hospital Databases. Nutrients. 2023 Jun 24;15(13):2860. doi: 10.3390/nu15132860. PMID: 37447187; PMCID: PMC10343618.
Tavakoli K, Kalaw FGP, Bhanvadia S, Hogarth M, Baxter SL. Concept Coverage Analysis of Ophthalmic Infections and Trauma among the Standardized Medical Terminologies SNOMED-CT, ICD-10-CM, and ICD-11. Ophthalmol Sci. 2023 May 25;3(4):100337. doi: 10.1016/j.xops.2023.100337. PMID: 37449050; PMCID: PMC10336190.
Oniani D, Parmanto B, Saptono A, Bove A, Freburger J, Visweswaran S, Cappella N, McLay B, Silverstein JC, Becich MJ, Delitto A, Skidmore E, Wang Y. ReDWINE: A clinical datamart with text analytical capabilities to facilitate rehabilitation research. Int J Med Inform. 2023 Jul 11;177:105144. doi: 10.1016/j.ijmedinf.2023.105144. Epub ahead of print. PMID: 37459703.
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July 11: European Symposium Review
Presentation (Renske Los, Talita Duarte-Salles, Maxim Moinat, Cesar Barboza)
July 18: Vulcan: An HL7 FHIR Accelerator Transforming Clinical & Translational Research
Presentation (Michael van Campen, Davera Gabriel, Hugh Glover)
July 25: Around the Asia-Pacific Region
Presentation (Jason Hsu, Lei Liu, Nicole Pratt, Tatsuo Hiramatsu, Mengling Feng, Chungsoo Kim)
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