The Journey Newsletter (March 2023)
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Our second Phenotype Phebruary gave the community a chance to collaborate on a critical aspect of real-world evidence generation. Our workgroup leads shared their respective goals for 2023, and the community announced the dates and locations for all three symposiums for the coming year. Learn more about these updates and plenty more in our March newsletter. #JoinTheJourney
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In the latest On The Journey video, Patrick Ryan and Craig Sachson discuss what took place in Phenotype Phebruary and the importance of phenotype development and evaluation to the reliable generation of real-world evidence. They reflected on the recent announcements of 2023 goals for OHDSI workgroups and how the collaboration between respective groups is strengthening OHDSI, and they look at several collaboration opportunities, including all three OHDSI symposiums in 2023.
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Where Have We Been?
• Phenotype Phebruary is complete, and a collaborative effort led by Gowtham Rao and Azza Shoaibi put our community in position to evaluate 11 phenotypes and discuss several important topics around the area. Just as helpful, this work highlighted both the challenges and opportunities surrounding reliable phenotype development and evaluation in observational science.
• The EHDEN Academy recently announced that its free, virtual academic program that contains 17 courses around all aspects of real-world-evidence generation has been used in more than 100 countries by nearly 3,500 course enrollees. If you are interested in learning more or getting started, please visit the EHDEN Academy homepage.
Where Are We Now?
• The Save Our Sisyphus Challenge, discussed by Patrick Ryan during a January community call, will begin this month. Step one will be identifying a research question to investigate, and we will hear about some of the submissions during our Tuesday, March 7 community call.
• Our OHDSI workgroups have identified their major goals for the upcoming year, and they shared them throughout our February community calls; each brief presentation is now available on our workgroups home page. Our 30+ workgroups continue to seek collaborators, so if you would like to join any of these teams, please fill out this form.
Where Are We Going?
• The three OHDSI Symposiums for 2023 have been announced. The European Symposium will be held July 1-3 in Rotterdam, The Netherlands. The Asia-Pacific (APAC) Symposium will be held July 13-14 in Sydney, Australia; submissions are now open for the APAC Collaborator Showcase, and will remain open through March 31. The Global Symposium will be held Oct. 20-22 at the Hilton East Brunswick Hotel & Executive Meeting Center in East Brunswick, N.J.
• DevCon 2023 is set for Friday, April 21, and calendar invitations will go out soon. The first DevCon was organized by Adam Black and Paul Nagy last year and served as a way of accepting and mentoring new contributors to our environment, while also engaging in discussions with leaders in open-source development.
How Can You Join The Journey?
• The OHDSI research community strives to promote better health decisions and care through globally standardized health data, continuously developing large-scale analytics and a spirit of collaboration though open science. We are proud to have more than 3,200 collaborators across six continents, as well as health records for about 928 million unique patients from around the world. We are always looking for new collaborators, so if this sounds exciting to you, please learn more about how you can Join The Journey!
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Community-Wide Effort To Develop & Evaluate Phenotypes, Discuss Challenges Highlight Successful Phebruary Activity
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“Phenotype Phebruary” is a community-wide initiative to both develop and evaluate phenotypes for health outcomes that could be investigated by the community.
This is the second year of Phenotype Phebruary in the OHDSI community (look back at Year 1 here). The leadership team of Gowtham Rao and Azza Shoaibi helped identify 11 phenotypes that were investigated throughout the month, as well as four topics that have proven challenging around the process.
Phenotype development is not limited to one month alone, so please visit our homepage to find all these ongoing discussions and share your perspectives around these important questions.
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Faaizah Arshad is a psychology major at UCLA who has already taken a strong role within the OHDSI community. She became the first undergraduate to take part in a symposium plenary whenn she presented on ‘The EUMAEUS project: Applying methods sequentially’ during the 2021 Global Symposium.
She and Ross Williams co-founded the Early-Stage Researchers workgroup in 2021 to create an inviting venue for junior OHDSI community members early in their careers to navigate OHDSI’s resources, ask questions, present their research, find mentorship through networking, and seek insight on their career trajectories. Currently, the workgroup hosts a Career Speaker Series each month, and has led “Meet The Mentors” events at the European and Global Symposiums.
Arshad was honored with the Titan Award for Community Support in 2021. In the latest collaborator spotlight, she discusses how OHDSI has impacted her undergraduate education, how she was able to make such an impact so early in her journey in observational research, and why she believes other junior researchers can make an impact in OHDSI.
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Everybody is invited to the weekly OHDSI community call, which takes place each Tuesday at 11 am ET. These calls are meant to inform and engage our community through a variety of call formats, including community presentations, workgroup updates, breakout sessions, publication announcements, newcomer-focused sessions, and more.
This month will include one of our most popular sessions, the OHDSI debates, as well as presentations on recent publications from the community. We will also begin the "Save Our Sisyphus" network research project activity with a look at potential research questions on March 7, and then the first tutorial of the challenge on March 28.
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Andrew Williams has announced an exciting new initiative at the Institute for Clinical Research and Health Policy Studies at Tufts University. He is leading the new Center for Advanced Healthcare Research Informatics, which will work to produce new modes and methods of using healthcare-generated data and other related data to support research, and to use these methods at Tufts Medicine and in research communities to generate evidence and improve care.
Dani Prieto-Alhambra recently shared that the Health Data Sciences section of the Oxford University Botnar Research has created five Trueta bursaries for the residential one-week summer school in Real World Evidence, held June 19-23, 2023. These bursaries will cover free attendance to the Oxford Summer School 2023: Real World Evidence using the OMOP Common Data Model and accommodation (including breakfast and dinner) in Lady Margaret Hall facilities for the duration of the course. To learn if you are eligible for one of the bursaries and to apply, please visit this homepage.
Rachael Davis is leading a network study to characterize and evaluate trends in pathways for antiretroviral therapy (ART) for individuals who have been diagnosed with Human Immunodeficiency Virus (HIV) and treated persistently over two years. She is seeking collaborators and data partners for this study. Please reach out raechel.davis@yale.edu if you are interested in collaborating or participating.
There were several job openings announced over the last month. Check out our This Week In OHDSI page for all of the current listings.
The 2023 AMIA Symposium will be held Nov. 11-15 in New Orleans, La., and the annual call for participation is underway. Proposals are being accepted for papers, podium abstracts, panels, posters, debates, demos and workshops. The deadline is March 8, 2023.
The #OHDSISocialShowcase continues this month, as all the research from the OHDSI Symposium collaborator showcase will be presented on the Twitter and LinkedIn social feeds over the next several months. You can see the research and the respective leads that will be shared this week.
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Swerdel JN, Ramcharran D, Hardin J. Using a data-driven approach for the development and evaluation of phenotype algorithms for systemic lupus erythematosus. PLoS One. 2023 Feb 16;18(2):e0281929. doi: 10.1371/journal.pone.0281929. PMID: 36795690; PMCID: PMC9934349.
Kim C, Lee DY, Park J, Yang SJ, Tan EH, Alhambra DP, Lee YH, Lee S, Kim SJ, Lee J, Park RW, Shin Y. Safety outcomes of selective serotonin reuptake inhibitors in adolescent attention-deficit/hyperactivity disorder with comorbid depression: the ASSURE study. Psychol Med. 2023 Feb 20:1-9. doi: 10.1017/S0033291723000120. Epub ahead of print. PMID: 36803587.
Ostropolets A, Albogami Y, Conover M, Banda JM, Baumgartner WA, Blacketer C, Desai P, DuVall SL, Fortin S, Gilbert JP, Golozar A, Ide J, Kanter AS, Kern DM, Kim C, Lai LYH, Li C, Liu F, Lynch KE, Minty E, Neves MI, Ng DQ, Obene T, Pera V, Pratt N, Rao G, Rappoport N, Reinecke I, Saroufim P, Shoaibi A, Simon K, Suchard MA, Swerdel JN, Voss EA, Weaver J, Zhang L, Hripcsak G, Ryan PB. Reproducible variability: assessing investigator discordance across 9 research teams attempting to reproduce the same observational study. J Am Med Inform Assoc. 2023 Feb 24:ocad009. doi: 10.1093/jamia/ocad009. Epub ahead of print. PMID: 36826399.
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Feb. 7: Workgroup Goals for 2022 | Phenotype Phebruary Week 1
Workgroups: Common Data Model (Clair Blacketer), Data Quality (Clair Blacketer), Perioperative Medicine and Surgery (Jenny Lane), HADES (Martijn Schuemie), PLE Methods Research (Martijn Schuemie), Open-Source Community (Adam Black), and the Steering Group (Patrick Ryan)
Feb. 14: Workgroup Goals for 2022 | Phenotype Phebruary Week 2
Workgroups: ATLAS/WebAPI (Anthony Sena), Registry (Tina Parciak), OHDSI China (Lei Liu), CDM Vocabulary Subgroup (Michael Kallfelz), Dentistry (Robert Koski), APAC Steering Group (Mui Van Zandt), GIS (Kyle Zollo-Venecek), and NLP (Hua Xu)
Feb. 21: Workgroup Goals for 2022 | Phenotype Phebruary Week 3
Workgroups: Early-Stage Researchers (Faaizah Arshad), Healthcare Systems Special Interest Group (Melanie Philofsky), Oncology (Asieh Golozar), Eye Care and Vision Science (Michelle Hribar), Latin America (Jose Posada), Psychiatry (Dmitry Dymshyts), and Health Equity (Jake Gillberg)
Feb. 28: Workgroup Goals for 2022 | Phenotype Phebruary Week 4
Workgroups: Clinical Trials (Mike Hamidi), Vaccine Vocabulary (Asiyah Lin), Medical Devices (Asiyah Lin), Education (Nigel Hughes), FHIR & OMOP (Davera Gabriel), Medical Imaging (Paul Nagy), Perinatal and Reproductive Health Group (Alison Callahan), and Patient-Level Prediction (Jenna Reps).
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