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Northwest Sarcoma is proud to partner with Smart Patients, an online community for anyone affected by sarcoma. The online support of the Smart Patients Sarcoma Community complements the work of Northwest Sarcoma, whose mission is to provide hope, education, and support to anyone affected by Sarcoma in the Pacific Northwest while investing in research to improve cure rates for Sarcomas. They work to create a community dedicated to serving and empowering patients, caregivers, and survivors while leading change through advocacy, research, and education.

Join Smart Patients, ask a question, and support others who can learn from you.

Smart Patients Say

"It is such an important part of the cancer journey to be able to find those who understand!"
osteosarcoma sarcoma bone sarcoma
"I was diagnosed with ulms about 10 months ago. I was completely blind-sided, as I had only some intermittent pain to say anything was wrong."
leiomyosarcoma sarcoma uterine leiomyosarcoma
"I found this group for my husbands esophogeal cancer and it has been a blessing to me - too many times to mention, great folks."
sarcoma scanxiety soft tissue sarcoma spindle cell sarcoma
"Welcome to the group no one wants to be part of but are glad they found it."
sarcoma scanxiety soft tissue sarcoma spindle cell sarcoma
"I would really like to talk with others who have experienced pecoma. I feel like I am a pioneer here."
PEComa sarcoma soft tissue sarcoma
"It took some time for me to wrap my head around it. I avoided knowing anything for several months and then I felt better finding out as much as I could."
leiomyosarcoma sarcoma uterine leiomyosarcoma
"Reach out with any questions or concerns. Yes, SCANXIETY IS REAL."
sarcoma scanxiety soft tissue sarcoma spindle cell sarcoma
"I underwent radiation therapy for a sarcoma on my thigh 15 years ago. Here's some good advice from the American Academy of Dermatology"
sarcoma radiation undifferentiated pleomorphic sarcoma cancer
"I pray A LOT and try and "live" in between scans, always simmering my cancer on a back burner. It does get easier, believe or not. Hang in there."
sarcoma scanxiety soft tissue sarcoma spindle cell sarcoma
"Worrying doesn't change a scan, but it is so hard with each scan."
sarcoma scanxiety soft tissue sarcoma spindle cell sarcoma
"I have stage four leiomyosarcoma, I am currently NED after two years, there are many longer term survivors, not a easy journey for any of them but none the less they are thriving and surviving."
sarcoma leiomyosarcoma soft tissue sarcoma
"I live life scan to scan, trying not to dwell on the future inevitable as no one gets out alive, cancer or not."
sarcoma leiomyosarcoma soft tissue sarcoma
"I would wish for curative treatment that is not equally as painful as the cancer."
kidney cancer multiple myeloma carcinoid esophageal cancer ovarian cancer lung cancer prostate cancer sarcoma breast cancer colorectal cancer pancreatic cancer metastatic cancer melanoma bladder cancer
"I suspect what the doctor says and what the patient hears are often two very different things."
acinic cell carcinoma bladder cancer breast cancer carcinoid colorectal cancer esophageal cancer kidney cancer lung cancer lymphoma melanoma multiple myeloma ovarian cancer pancreatic cancer prostate cancer sarcoma
"You have chosen such a tough profession with some terribly hard moments. And it sounds like you are meant for this work-taking it to heart in addition to learning the science."
acinic cell carcinoma bladder cancer breast cancer carcinoid colorectal cancer esophageal cancer kidney cancer lung cancer lymphoma melanoma multiple myeloma ovarian cancer pancreatic cancer prostate cancer sarcoma
"Journey or quest works for me. I'm an avid reader, story and metaphor person. To be called forth on a journey begins a fairytale or quest narrative."
bladder cancer breast cancer carcinoid colorectal cancer endometrial cancer esophageal cancer GIST kidney cancer leukemia lymphoma melanoma multiple myeloma neuroendocrine tumor non-hodgkin lymphoma non-small cell lung cancer ovarian cancer pancreatic cancer prostate cancer sarcoma small cell lung cancer stomach cancer thyroid cancer
"If you are not a specialist in the particular type of disorder you are discussing, don't speculate, don't over-elaborate and don't overstate your knowledge. "
acinic cell carcinoma bladder cancer breast cancer carcinoid colorectal cancer esophageal cancer kidney cancer lung cancer lymphoma melanoma multiple myeloma ovarian cancer pancreatic cancer prostate cancer sarcoma
"For me living with cancer is a verb not a title."
bladder cancer breast cancer carcinoid colorectal cancer endometrial cancer esophageal cancer GIST kidney cancer leukemia lymphoma melanoma multiple myeloma neuroendocrine tumor non-hodgkin lymphoma non-small cell lung cancer ovarian cancer pancreatic cancer prostate cancer sarcoma small cell lung cancer stomach cancer thyroid cancer
"You already have the makings of a wonderful doctor because you are already taking into account your patients' feelings."
acinic cell carcinoma bladder cancer breast cancer carcinoid colorectal cancer esophageal cancer kidney cancer lung cancer lymphoma melanoma multiple myeloma ovarian cancer pancreatic cancer prostate cancer sarcoma
"When patients are in clinical trials, do centers provide any of the drugs for free? I know if it is a new drug that is being tested, that is provided free. What about the old "stand bys" like Revlimid?"
bladder cancer breast cancer carcinoid colorectal cancer esophageal cancer kidney cancer lung cancer medical costs melanoma multiple myeloma ovarian cancer sarcoma

About Smart Patients

Smart Patients is an online community for patients and families affected by a variety of illnesses. Here you can learn at your own level about scientific developments related to your condition, share your questions and concerns with other members, and use what you learn in the context of your own life.

We believe patients are the most underutilized resource in healthcare. We've watched patients become experts in their conditions — and we see that their knowledge improves the care they receive. With the right tools, you and other patients can do the same.

Smart Patients community members supporting each other through healthcare journeys
"Our paths may not be identical, but you will never walk alone. We are stronger and smarter together."

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Smart Patient

Diverse patient community members connecting and supporting each other

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