Participatory Cancer Care

Articles published in this theme: 122 (scroll down to load remaining articles)

2026

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Evaluating a Telehealth Coaching and Mobile-Based Digital Engagement Intervention for People With Cancer Using the Patient-Reported Outcomes Measurement Information System Global Health: Pilot Questionnaire Study

Joanne Lewis, Shen Wang, Toni Rose Jue, Tim Atkins, Scott A Irwin, Puneet Nanda, Davinder Sangar, Lynette Mackenzie, Raghav Murali-Ganesh

JMIR Cancer 2026 (Apr 01); 12:e72647

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A Supportive Group Intervention for Caregivers to Patients Diagnosed With Glioblastoma: Protocol for the SUGRI Study

Sara Nordentoft, Rikke Guldager, Helle Pappot, Tiit Mathiesen, Anders Tolver, Karin Piil

JMIR Res Protoc 2026 (Mar 11); 15:e81948

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Acceptability of Sharing Internet Browsing History for Cancer Research: Think-Aloud and Interview Study

Nicola Cara Gradwell, Mel Ramasawmy, Sanjula Arora, Manoj Mistry, Reshma Punjabi, Christina Derksen, Suzanne E Scott

JMIR Cancer 2026 (Feb 02); 12:e82009

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2025

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Exploring Women’s Perceptions of Traditional Mammography and the Concept of AI-Driven Thermography to Improve the Breast Cancer Screening Journey: Mixed Methods Study

Kristýna Sirka Kacafírková, Anneleen Poll, An Jacobs, Antonella Cardone, Juan-Jose Ventura

JMIR Cancer 2025 (Sep 10); 11:e64954

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Strategies for Tailoring Patient-Centered Technologies Across the Cancer Continuum: Protocol for a Scoping Review

Willi L Tarver, Diamond A Boyd, Pallavi Jonnalagadda, Mireille M Bitangacha, Timothy M Pawlik, Elizabeth Palmer Kelly, Electra D Paskett

JMIR Res Protoc 2025 (Sep 09); 14:e73705

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How to Improve Pancreatic Cancer Network Care Using a Human-Centered Design Sprint

Jana S Hopstaken, Mats Koeneman, Robin Hooijer, Concha C van Rijssel, Theo van Voorthuizen, Frank A Oort, Charlotte F J M Blanken, Martijn de Groot, Cees J H M van Laarhoven, Martijn W J Stommel

J Med Internet Res 2025 (Sep 05); 27:e55598

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Effects of a Multidisciplinary Intervention on Fatigue in Lymphoma Survivors With Chronic Fatigue: Protocol for a Randomized Controlled Trial (REFUEL)

Synne-Kristin Hoffart Bøhn, Kristin V Reinertsen, Cecilie E Kiserud, Jon Håvard Loge, Alexander Fosså, Tone Skaali, Rune Blomhoff, Line Merethe Oldervoll, Kerry S Courneya, Truls Raastad, Tormod S Nilsen, Torbjørn Wisløff, Hanne Cathrine Lie, Torkil Berge, Elisabeth Edvardsen, Unn-Merete Fagerli, Elin Fjerstad, Gunhild Maria Gjerset, Ingvild Haavik, Hege Berg Henriksen, Arkady Rutkovskiy, Gro Sandberg, Mette Seland, Malene Slott, Kristin Holm Tjessem, Linn Viktil, Lene Thorsen

JMIR Res Protoc 2025 (Aug 29); 14:e69336

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Engagement Methods in Brain Tumor Genomic Research: Multimethod Comparative Study

Matthew DeCamp, Juliana G Barnard, Carly Ritger, Laura J Helmkamp, Anowara Begum, Sandra Garcia-Hernandez, Rudy Fischmann, Nestelynn Gay, Ricardo Gonzalez-Fisher, Kevin C Johnson, Lindsay A Lennox, Guy R Lipof, Jasmyn Ostmeyer, Ifeoma Perkins, Laura Pyle, Liz Salmi, Talia Thompson, Elizabeth B Claus, Roel Verhaak, Bethany M Kwan

J Particip Med 2025 (Aug 21); 17:e68852

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Perceptions and Needs of Stakeholders Regarding MyPal Project’s Electronic Patient-Reported Outcome App: Cross-Sectional Qualitative Focus Group Study

Dimitrios Kyrou, Panos Bonotis, Christine Kakalou, Maria Vasilopoulou, Lydia Scarfò, Marcel Meyerheim, Annette Sander, Tomáš Arpáš, Eleni Kazantzaki, Christos Maramis, Christina Karamanidou

JMIR Cancer 2025 (Aug 13); 11:e57388

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Capturing Community Perspectives in a Statewide Cancer Needs Assessment: Online Focus Group Study

Jessica R Thompson, Keeghan Francis, Caree R McAfee, Madeline Brown, Todd Burus, Melinda Rogers, Connie L Sorrell, Elizabeth Westbrook, Lovoria B Williams, Jennifer Redmond Knight, Elaine Russell, Natalie P Wilhite, Pamela C Hull

JMIR Cancer 2025 (Jul 31); 11:e63717

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Practical Approaches to Patient-Centered Care in Europe: Mixed Methods Study Developing a Conceptual Framework for Comprehensive Cancer Care Networks

Emily Hickmann, Peggy Richter, Hannes Schlieter, Maja Cemazar, Dorota Dudek-Godeau, Nele Grapentin, Ellen Griesshammer, Marjetka Jelenc, Sigita Liutkauskiene, Alain Ravaud, Xavier Troussard, Simone Wesselmann

JMIR Cancer 2025 (Jul 31); 11:e59683

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Public Involvement in Cancer Research: Collaborative Evaluation Using Photovoice

Piotr Teodorowski, Melanie McInnes, Glen Dale, Linda Galbraith, Esme Radin, Karen Gold, Erica Gadsby

JMIR Cancer 2025 (Jul 28); 11:e75741

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Examining How Technology Supports Shared Decision-Making in Oncology Consultations: Qualitative Thematic Analysis

Alan Yung, Tim Shaw, Judy Kay, Anna Janssen

JMIR Cancer 2025 (Jun 11); 11:e70827

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Personal Health Record Software for Neuroendocrine Tumors: Patient-Centered Design Approach

Juan Pablo Hourcade, Michael O'Rorke, Elizabeth Chrischilles, Nicholas J Rudzianski, Brian Gryzlak, Kerry Peterman, Chris Ortman, Sam Wolstencroft, Margaret Bean, Elyse Gellerman, Josh A Mailman, Maryann Wahmann

JMIR Hum Factors 2025 (Jun 03); 12:e68788

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ENABLE—App-Based Digital Capture and Intervention of Patient-Reported Quality of Life, Adverse Events, and Treatment Satisfaction in Breast Cancer: Protocol for a Randomized Controlled Trial

Thomas M Deutsch, Léa L Volmer, Manuel Feisst, Laura Bodenbeck, Kathrin Hassdenteufel, Lara Tretschock, Christiane Breit, Stefan Stefanovic, Armin Bauer, Carolin Anders, Lina Weinert, Tobias Engler, Andreas D Hartkopf, Nico Pfeifer, Pascal Escher, Marc Mausch, Oliver Heinze, Marc Suetterlin, Sara Y Brucker, Andreas Schneeweiss, Markus Wallwiener

JMIR Res Protoc 2025 (May 26); 14:e69855

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Co-Designing a User-Centered Digital Health Tool for Supportive Care Needs of Patients With Brain Tumors and Their Caregivers: Interview Analysis

Mahima Kalla, Ashleigh Bradford, Verena Schadewaldt, Kara Burns, Sarah C E Bray, Sarah Cain, Heidi McAlpine, Rana S Dhillon, Wendy Chapman, James R Whittle, Katharine J Drummond, Meinir Krishnasamy

JMIR Cancer 2025 (May 23); 11:e53690

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Evaluating an AI Chatbot “Prostate Cancer Info” for Providing Quality Prostate Cancer Screening Information: Cross-Sectional Study

Otis L Owens, Michael S Leonard

JMIR Cancer 2025 (May 21); 11:e72522

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Trust and Privacy Concerns Among Cancer Survivors Who Did Not Visit a Research Website Offering Free Genetic Counseling Services for Families: Survey Study

James A Shepperd, Colleen M McBride, Weihua An, Jingsong Zhao, Rebecca D Pentz, Cam Escoffery, Kevin Ward, Yue Guan

J Med Internet Res 2025 (May 06); 27:e64228

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Sustainability and Time Trends in Electronic Patient-Reported Outcome Assessment in Routine Cancer Care: Systematic Scoping Review and Follow-Up Survey

Niclas J Hubel, Samuel M Vorbach, Kelly M de Ligt, Ines S Rathgeber, Katharina Beyer, Lisa M Wintner, Barbara Faller, Jasmin Nemec, Bernhard Holzner, Monika Sztankay, Jens Lehmann

J Med Internet Res 2025 (Apr 25); 27:e69398

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A WeChat-Based Decision Aid Intervention to Promote Informed Decision-Making for Family Members Regarding the Genetic Testing of Patients With Colorectal Cancer: Randomized Controlled Trial

Huanhuan Li, Yanjie Zhao, Wei Li, Wenxia Wang, Shengze Zhi, Yifan Wu, Qiqing Zhong, Rui Wang, Jiao Sun

J Med Internet Res 2025 (Apr 21); 27:e60681

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